Coming to terms with an Early Onset Alzheimer’s Diagnosis

How has my diagnosis affected me? On a personal level, quite a bit. My father always worried that he would develop it the same way his mother did and that imprinted on me somewhat. My Dad started to decline and the familial aspect that I may have this on my horizon was more present. In… Continue reading Coming to terms with an Early Onset Alzheimer’s Diagnosis

My Experience with Dian-tu’s DIAN-001 E2814 and Lecanemab Combination therapy trial

Retrospective – 2023 the year that flew by. I started my drug trial in April last year and I did not know what to expect. When I started this online diary I was going to be doing so in real time but it’s not panned out that way and probably for the best. When talking… Continue reading My Experience with Dian-tu’s DIAN-001 E2814 and Lecanemab Combination therapy trial

How I found out about my PSEN1 Mutation

Family history was a warning sign. In some ways I’ve always had this latent, pessemistic fear of Alzheimers and it’s something that has shaped my life to a certain extent. My Nan was diagnosed with vascular dementia at 50 but in hindsight it was likely the arg269his mutation. My father also lived in fear of… Continue reading How I found out about my PSEN1 Mutation

Hello to the world of the PSEN1 mutation – Arg269his / R269H

I’ve been thinking for the last few months about how I was going to start this blog. I enjoy writing but this subject matter is hard to start off. There’s the statement piece or maybe the introduction, the bit where I start off talking about the reader first before talking about me but towards the… Continue reading Hello to the world of the PSEN1 mutation – Arg269his / R269H